26 December 2013
Chemo #6 - Hopefully my LAST chemo...
**Chemo #5 was a doozy.
**My neutrophils (the emerging/immature white blood cells) were 0.03 at my nadir labs a week after. They're supposed to be at least a 4.0. I had been feeling pretty awful, and my infusion nurse, Sharon, said that was definitely why I felt so bad. I probably shouldn't have gone to work all week, but when I don't work, I don't get paid. It's hard to negotiate the gap between work & my health at this point because I'm so tired and it takes my body so much longer to bounce back from each chemo treatment.
I got lots of shots after my nadir labs to help my white blood cell count. They cause some bone pain, but since I switched to a different allergy pill, the pain is much more manageable.
**This past weekend, I slept. I woke up on Saturday morning, ate some breakfast and drank some coffee, then took a nap. I woke up in time for lunch, and took another nap. Then I woke up in time for dinner, and took another nap. I finally just got in the bed... Sunday was a repeat of Saturday. Sadly, I didn't really feel rested for work on Monday, and could have easily slept all day again, but I went to work anyway.
**Christmas Eve and Christmas Day were spent with the family. It was nice, and everyone got along well... We had so much delicious food for Christmas Eve dinner, but I didn't have the best appetite. I ate as much as I could though, because who can pass up beef tenderloin, roasted garlic mashed potatoes, mushroom/sherry cream sauce, and crepes? Not this girl.
Hopefully, I get an extra infusion for my white blood cells today during my chemo treatment so that I don't have the overwhelming fatigue I had after the last treatment. Hopefully, I can get out and walk some this weekend so I don't feel so home-bound and lazy. Hopefully, I can blog about some things over the next few weeks other than how I feel so tired and sick. Keep your fingers crossed!!
05 December 2013
Chemo #5 - Penultimate Poisoning
29 November 2013
Thanksgiving & Black Friday Traditions
MJ, Dixie the Jack Russell fur baby, and I showed up at my family's house on Late Standard Time, as usual. Mom & my sister were heading out the door to go to Thanksgiving lunch at an aunt's & uncle's house as we were walking in. Dad was recovering from surgery so he stayed home and had the added bonus of a cute little dog to cuddle and nap with him while we were all gone. I got a mean case of chemo brain and made a wrong turn, which made me feel rather stupid and made us even later. We ended up being about 45 minutes late to lunch.
The food was delicious, and I stuffed myself silly.
I got to see some cousins & other family members that I rarely get to see. It was a really good day, and I felt pretty decent too.
All the activity of the day certainly wore me down, because I fell asleep before 9pm.
The following day was the dreaded Black Friday. After working retail for many years, I avoid shopping on this day. I find the violent commercialism utterly distasteful.
My mom, sister and I started the tradition of going for hikes instead. We normally do part of the Palmetto Trail, but this year, I just couldn't hike 6+ miles. We did about 2 1/4 miles instead, which was coincidentally about all I could handle. I passed out at 8:30 that evening, and I slept like the dead.
25 November 2013
CT Ready
I had to drink another "smoothie" once they called me back to prep for the CT scan. It was equally "delicious;" it was also equally chilled.
It took 45 minutes to get my port accessed and to get set up for the CT scan.
The CT scan itself?? 7 minutes. The contrast dye was HOT going through my port. I felt like I was on fire from the inside, but not in a terrible way, because it was so COLD today. It also made me feel like I'd peed myself a little. I was warned about this sensation, and I assure you that I didn't pee myself today.
Lucky for me, the radiology people left my port accessed so that I could walk over to my oncologist's office for all my labs.
Blood work was good today. No shots needed!!
Happy Thanksgiving, everyone!
14 November 2013
Lola's Chemo #4
07 November 2013
Please, Please, Please, Let Me Get What I Want
In the weeks between my chemotherapy infusions, I go to get lab work done & see my oncologist for visits. After my 2nd infusion, my aunt delightedly confirmed that she is also unable to feel the formerly lime-sized tumor that took up residency in my right breast. Today, my oncologist suggested that we get some scans done after my next infusion, and (in his words) "re-evaluate the course of treatment."
So, perhaps, my next treatment might be my last full chemo infusion. Cross fingers, everyone.
31 October 2013
Mid Treatment, Nadir Blood Work!!
My vision, especially night vision, has been so foggy that watching TV is a chore, and driving is pretty much off the list. This symptom started from the first chemo, lasts about 5 days, and then fades, but as my treatments progress, I've noticed that this symptom (and others) are getting more pronounced, last a little longer and are just a little harder to deal with. Such is the nature of chemo, I keep reminding myself. "I'm halfway there" is my new mantra.
26 October 2013
Happy Birthday, Lola!! Love, Chemo.
12 October 2013
Bring the Pain
More Chemo Aftermath
I had a really rough week.
06 October 2013
Thank You, and Yes, I Know I Should Be Sleeping Right Now....
04 October 2013
Chemo, Part 2: Electric Boogaloo
I slept quite a bit once I got home, after Mom and I ran a few errands. Then, my sweet JBB arrived with peanut butter brownies, loaded with peanut butter chips, mini-Reese's Peanut Butter Cups, and peanut butter drizzle. Those things won't see the light of day tomorrow. I promise you.
28 September 2013
"Tell them you want the 'Telly Savalas'..."
27 September 2013
Sabbatical for Chef Lola
Nevertheless, here I am... at midnight... writing.
So far this week, I've managed to work every day. I cooked dinner every night this week.
(Granted, I made sandwiches one night and basically re-heated something from the freezer tonight, but I'm counting it. I have high hopes for a gigantic pot of marinara sauce tomorrow night, which I will transform into myriad dinners through the first part of next week.)
But once dinner was cooked, and I finally got to sit down to eat, I've been ready to go to sleep.
I've got one week before I have chemo again. It's possible that this is my new baseline, and I'm OK with that, really. It's also possible (or more likely) that I'll be even more tired for the next round. It also means that I need to be a bit more organized and efficient with planning my meals.
Luckily, everything tastes funky right now, so I'm not interested in cooking elaborate things for dinner.
I have several days next week covered with my marinara, but I'm looking for different "cook once, eat several times" types of dishes to make over the next few months. I need extra protein. Sadly, I can't tolerate anything remotely spicy right now either.
Any ideas, readers???
24 September 2013
Water Water Everywhere
My knees started hurting before I even finished Sunday, but I just figured I'd go home, put some ice on them, and carry on. Wrong answer.
I'm retaining water. This is also a new experience for me. A miserable new experience...
Everything aches. My knees, my ankles, my hands are all swollen and tight. I can't bend my knees past a 90 degree angle, and they're so stiff that I hobble instead of walk right now. My hands hurt if I try to make a fist.
My aunt is calling in a prescription for a mild diuretic. I would have my fingers crossed that it's all I need, but my fingers are too swollen to cross right now.
20 September 2013
Insomnia Aids Rude Awakenings
19 September 2013
Genuinely Happy WBC Dancing!!!
Today, I got my Good News.
18 September 2013
Elegant Sledgehammers
16 September 2013
Hydration & TMI & Other Side Effects
Here comes the TMI part:
15 September 2013
Third Day's the "Charm"
Post Chemo, Friday-Saturday
I did have to invest in a large bottle of Tums (the wintergreen flavor, please-&-thanks) because I've had some heartburn. I *never* have heartburn, so I'm not sure if it's just stress or a legitimate side effect.
Saturday, I travelled to Augusta for a short visit with a few friends. We had pizza, of which I ate very little. I think my appetite is not great at this point. We walked around quite a bit, but nothing strenuous, and I am used to walking around a lot. I did start to feel the fatigue set in around midnight. Luckily, that's about when we stopped walking around so much. Once we made it back to our hotel room, though, I was done.
When I woke up the next morning, things had taken a decided turn. I definitely had a fever. I was achy, exhausted, and a little over an hour away from home. I felt like I got hit by a truck...a very large truck that dragged me all the way back to town....
12 September 2013
Lola's First Chemo, Part One
I opted to have my blood sample(s) for labs drawn through my Port-A-Cath in my chest so that the nurses would only have to poke me one time. It'll extend my stay in the infusion room for a little while today, but in the meantime, I get a bag full of saline for extra hydration. I just got some anti-nausea solution and antihistamine in my IV to prepare for my first chemo drug. The three infusions are given separately. The first infusion of each of the drugs goes more slowly for the first visit, so the nurses can make sure I'm not going to have any allergic reactions. Today, I'll be in this recliner until 3 pm.
Lola's First Chemo, Prequel
Yes, I am oddly "excited" about starting chemo. It sounds weird to you, I know. It feels weird to me. I'm not excited, like today's my birthday and I'm having a big party. I'm excited, like I'm in uncharted waters, like I don't know what's going to happen next, like things could go perfectly well or horribly wrong, and I get to roll with either direction. I have no control over whether this concoction of systematic poison is going to work well or not at all.
06 September 2013
Final Countdown
03 September 2013
It's official. I'm a hard ass.
It's been an exciting day. I worked half a day today because, once again, I got to visit the hospital for a "procedure" this afternoon.
Since my bones lit up like Christmas on my PET scan last week, my oncologist thought it would be prudent to order a bone biopsy to test for type (we're rooting for HER2+, kids!)
My aunt, the Oncology nurse, called me yesterday with the appointment time: today, at 1pm. **Mind you, I have tickets to see Muse in Charlotte, NC, tonight. So, like the little trooper I am, I took the appointment, and I'm currently doped up on Percocet, on the way to Charlotte.**
I got to the hospital at 12:15pm and waited for the nurse to call me back for pre-op. JBB generously donated her chauffeur skills, and also recommended an evil little game called "Dots" to keep me distracted while we waited. (Thanks, JBB! Just what I need: another time-sucking addictive game. I love it. And hate it. :-P )
I learned some things today:
1. My new Port-a-Cath rocks. It took the nurse no time at all to hook up my IV.
2. The doctor that did my bone biopsy was hot... and he basically got 30 minutes of one-on-one time with my ass this afternoon.
3. My bones are surprisingly very hard. The hot doctor said so.
4. I know what a bone drill sounds like. And it is very disconcerting.
30 August 2013
The Good, The Bad, The Bony
Sadly, today was not really that day.
I finally got the results of my PET scan from last Saturday.
Don't freak out; I'm not, yet.
The good news? All of my internal organs are clear.
The bad news? My bones were not so lucky.
The ugly news? I get a bone biopsy next week for confirmation.
Needless to say, chemo is on hold until we get more biopsy results. Tentatively, I'll start chemo the second week of September...
Here's why I'm not exactly losing my mind right now: there's a fancy-pants chemo drug that targets bone.
Let's cross our fingers.... again.
Limbo
I've already had the strange glances at the port on my chest, people asking if I'm OK while pointedly staring at the incisions... Is is wrong that I said, "No, I'm fine..." to someone at work? Is it worse that I told the truth to the very next person who asked? I feel almost guilty when I tell the truth to some people and withhold from others. I feel strange when I say "I'm fine" when, technically, I'm not. I feel even more strange if there's a rush of emotion, and I find my voice cracking when I say, "I have cancer." That makes me feel like a fraud.
I feel like I've already failed to live up to the "survivor" label every time I have to assure someone that it's not a matter of *if* I lose my hair, but *when* I lose it, and that my preparation is not a sign that I've (already) given up.
I probably sound ungrateful right now, but really, I'm not. I know that I'm profoundly lucky to have so many people thinking about me and praying for me and helping me.
I'm supposed to be appropriately somber. I must be unapologetically courageous. I should have ridiculous optimism.
Unfortunately, on my best days, I'm crass. I have a twisted sense of humor. I'm a cynic.
I'm much more likely to tell a off-color cancer joke than lead a kumbaya.
If my joke is funny, though, please laugh with me.
28 August 2013
Filling in the ________
Currently:
I'm in a haze of pain killers, which really aren't killing the pain as much as just tempering it a bit. I'm ridiculously sore. The incisions on my chest and in my armpit are tender, and look like I've been toyed with by a very selective fetishist. I don't have any stitches, because my surgeon super-glued the incisions closed with DermaBond and covered the sites with a liquid bandage. They're all shiny, a little swollen, pink, and "new" looking. Also, I "found" 2 electrode stickers on my body from the surgery last night. Yes, it's a little disconcerting, but let's all cross our fingers that those were the only items "forgotten" from my surgery yesterday.
27 August 2013
Surgery Virgin
24 August 2013
Heavy PETting
I had a PET scan this morning. The lovely radiology tech injected my "perfect vein!" with a radioactive solution and I got to relax in a comfy chair for about 45 minutes before I laid on a hard bed and was shuttled (very s-l-o-w-l-y) back and forth through a white plastic tube for about 25 minutes. The tech said I didn't move a muscle. I guess all that practice in shavasana at the end of yoga practice has helped me after all.
The tech said that she is sending all the image results to the radiologist today, probably it's already in his/her hands, and that my oncologist should be able to look at it Monday. I have to go in for pre-op testing Monday afternoon, so I'll probably be impatient enough by then to contact the oncologist or my aunt to see what's up...
23 August 2013
The Calm Before
The past two days have seemed relatively normal. No doctor appointments, no strangers fondling my oversized right breast, no medical tests...
The only times I've had that twinge of panic/fear is when the oncologist called to schedule my PET scan for this Saturday (which is actually tomorrow) and when my surgeon called to schedule my Port-a-Cath placement surgery for Tuesday....and right this second, because I'm writing about it.
It's beginning to seem a bit more "real" to me. I'm not in denial, but feeling sort of out-of-body right now. like I'm watching it happen and waiting...
20 August 2013
Oncology, Part 1
My nurse at the oncology office is my aunt, so I feel very comfortable with that situation. She offered to keep my mom in the loop so I don't have to for now. I'm really thankful that she is willing to do that, because I could regurgitate everything I tried to absorb from today's visit on this blog, but I really don't have the energy to do it over and over again.
So, without further ado:
19 August 2013
Diagnose this
I spent all weekend stressed and worried, and all day today distracted and on edge, mostly because my imagination loves to run wild speculating on the myriad ways I could die from this.
That aside, it is just nice to know *which* particular invader has taken up lodging in my breast, and especially great to have such an awesome team of doctors & nurses to take care of me right now.
So, the official diagnosis is a Triple Positive Breast Cancer, meaning my tumor is hormone fed (bye-bye birth control....) and very fast growing/aggressive. Luckily, we caught it pretty early, but we're pretty sure it's already spread to the lymph nodes in my right breast (where the tumor is.)
I see the oncologist tomorrow, probably will have a PET scan on Saturday. Then I get a port installed for chemotherapy next week, and start the chemotherapy anywhere from 1-3 days after getting the port installed.
Once I've had a few rounds of chemotherapy, and the tumor responds (fingers crossed,) I'll have a lumpectomy followed by radiation.
I'm overwhelmed and everything is happening so fast, so I'm sure I'm not emotionally processing anything right now.
At this point, my focus is to get through this week. I'll worry about the rest later.
16 August 2013
The Big C
I have cancer.
I don't know what kind, but we scheduled an appointment for Monday at 3pm. She should have more information about the type of cancer and should be able to give me a better idea of how we can treat it.
I need a drink.
15 August 2013
Biopsy
So now, I have a small incision under my breast which is now covered with steri-strips to keep it from opening/bleeding, a few missing bits of breast tissue, and brand new metal marker in my boob.
It's already sore, tender, achy.
My doctor should call me with preliminary results from the biopsy tomorrow. I know I'm not going to be able to function at work while waiting for her call.
14 August 2013
MRI results
I freaked out on my co-workers, but they were all understanding. I left work because I just couldn't find the energy for phone tech support when my brain really wants to focus on the worst scenario imaginable.
13 August 2013
MRI
I went in for the MRI at 6:15am. I changed into baggy ridiculous ugly scrubs and the technician gave me an IV for the contrast dye infusion.
He asked me if I had a special request for music... I asked for techno. I got house. Close enough.
A female tech helped me get settled on the "bed" of the MRI machine, face down & topless. I got headphones faintly pulsing with electronic music.
I know I must have fallen asleep for most of the procedure. After all, I can fall asleep just about anywhere/anytime.
I do remember when the contrast dye was mechanically injected into my arm. My fingers got cold, my lips tingled and I smelled/tasted metal.
Once the procedure was finished, I felt dizzy. I'm not sure if it was because I was suddenly awake and mobile after remaining so still for over an hour, or if it was just a side effect from the contrast dye.
12 August 2013
Breast Specialist Doc
I get to find the elusive piercing shop that is open on Mondays so that I can replace all the surgical stainless steel in my body with acrylic.
Really big magnets + stainless steel in sensitive bits = NO FUN.
05 August 2013
Lump
We decided it was time to have the gyno/breast exam portion of our visit. She found a lump.
She wrote me a referral to have a mammogram & sent me on my way.
I sometimes have lumpy boobs, so I really just thought it would go away after a while.
I really wish I could have a do-over on that decision to wait it out.
I finally got a mammogram and sonogram done. The doctor who looked at my mammogram and sonogram results decided that I should try a course of antibiotics, to rule out an infection of the breast tissue.
I finished that 10-day course of antibiotics with no change in my right breast, much to my dismay.